Resources for Chronic Illness

Chronic Illness Resources
Chronic Illness Resources

Books/Ebooks

Just the Right Dose: Your Smart Guide to Prescription Drugs & How to Take Them Safely by Marijke Vroomen Durning RN  This guide will answer the most common questions about taking your medications safely. Highly recommended!

The Patient’s Playbook: Find the “No-Mistake Zone” by Leslie D. Michelson. “He has devoted his life’s work to helping people achieve superior medical outcomes at every stage of their lives. His real-life stories impart lessons and illuminate easy-to-follow strategies that will enable you to become a smarter, better health care consumer—and to replace anxiety with confidence.” 

Living a Healthy Life with Chronic Conditions: Self-Management of Heart Disease, Arthritis, Diabetes, Asthma, Bronchitis, Emphysema, and others by Kate Lorig, RN DrPH; Halsted Holman, MD; David Sobel, MD; Diana Laurent, MPH; Virginia Gonzalez, MPH; and Marian Minor, RPT PhD.  This book is a treasure trove of information on how we can maximize our functioning level so we can do more of the things we want to in life.  Most of the chapters focus on issues common to various diseases like pain, fatigue, and deconditioning from decreased activity levels.  It also covers communication, sex and intimacy, managing your own care and planning for the future.  I return to this book over and over again.  It is that good!

Websites

Rest Ministries is a support group that provides Christian devotions and supportive community.  It really was helpful to me and if you are feeling discouraged it definitely is worth checking out!

Chronic Babe is a fun and helpful resource.  Jenni is warm and knowledgeable and adds fun to living a life with chronic illness. I enjoy her AWAP Wednesday videos very much. AWAP means “as well as possible.” Her site always cheers me up.

The Mighty is a website filled with reader submissions about various aspects of dealing with chronic illnesses, disabilities, and mental illnesses.  This site is filled with the voices of others struggling with similar struggles and sorrows.  I find it to be an honest and useful place to visit!

Courses

The CFIDS and Fibromyalgia Self-Help Program is a non-profit organization offering low-cost online self-help courses and other resources for people affected by Chronic Fatigue Syndrome (CFS) and fibromyalgia (FM). Founded in 1998, it has conducted hundreds of self-help groups teaching thousands of people how to manage their illness.”  http://www.cfidsselfhelp.org/online-courses

http://www.mecfsselfhelpguru.com/  Julie provides coaching, and Meditation, Mindfulness, and Relaxation courses online. I am currently taking one of her courses and am finding it very helpful.